Home business, home education and health challenges: what makes us tic?

Posts tagged ‘ADHD’

Why I will do whatever I can NOT to drug my kids into “normalcy”

Pills. Dubious.

Pills. Dubious.

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SCD, here we come!

Alright, we’re ready. On Saturday we went shopping and bought everything we need for the SCD Intro Diet. This is supposed to last for three days (give or take a day), and it cost us R164. That’s really, really good for three days for our family, so I think perhaps it won’t last as long as I’m hoping. But some of that stuff will last longer than three days, like the eggs, so we’ll see.

I spent most of Sunday (the bits where we weren’t at Church), preparing for the diet. I have given my family their “last meals.” (Pies and crisps. I know. Don’t judge me). I have cooked up a gigantic pot of chicken-and-carrot soup, 36 meatballs, 8 bowls of grape jelly and a dish of purèed carrots. I also have 40-odd eggs in the fridge, just waiting to be breakfast!

Now, I don’t know how long this lot is supposed to last, but it feels like about two days’ worth. Except the jelly – that’ll get us through today only. Again, we’ll see. The intro diet is supposed to take between two and five days, so we’ll re-evaluate on Tuesday night and decide what to do next. I foresee another full day of cooking in my future, though.

Here’s what I hope to achieve from all of this preparation:

  • Fewer headaches (especially for Goldilocks and me);
  • Fewer stomach cramps (especially for Goldilocks and Red Riding Hood);
  • Better concentration (esp. Papa Bear and Goldilocks);
  • Fewer mood swings (all of us);
  • Better skin (mainly me);
  • Fewer allergic reactions (all of us but especially Papa Bear);
  • Fewer nightmares (Red Riding Hood);
  • Better sleep (all of us, but esp. Papa Bear and me);
  • More energy (the Big Bears again); and
  • Better focus.

When I list these like this they really don’t seem that serious. One might even wonder why we’re bothering with such a strict diet and lifestyle change. But the thing is that the headaches are really debilitating at times, leaving the girls in tears and me wishing I could get away with tears! The girls spend a lot of time doubled over in agony at their stomach cramps (and their relief is our demise as they expel the offending bubbles. Sorry to share but this journey is important to me and I need to remember as much of where we started as possible so that when I look back I can see real change).

My skin breaks out all the time. It’s painful and decidedly embarrassing, given that I really am too old for this kind of thing. I’ve even had to cancel client meetings because of my skin (or headaches, or tummy troubles). Papa Bear and Goldilocks battle to concentrate and often Papa Bear’s not even here, despite being physically present. He also battles terribly with hay fever, and his hay fever, tiredness and tummy troubles have kept him out of meetings and appointments, too. Not being able to concentrate affects us all and I imagine things can only improve if we have better moods and better focus.

My vision for the outcome of this new eating plan is that we will have energy, joy, focus, time (because of better sleep and better planning), success (because of more confidence and fewer canceled appointments), and all-round awesomeness. I know the beginning is very tough indeed, and I don’t expect it to be easy, but I am looking forward to the long term results. I’ll keep you posted.

Curiouser and curiouser: interesting theories on ADD, migraines and digestive issues.

Goldilocks and Papa Bear both have ADD, apparently. It not much of a surprise – there are long lines of it on both sides of both families, after all. When Papa Bear was in school, there was no such thing as ADD, of course. In those days he was simply told to “apply himself”, and that was that. Nowadays, between research, technology, advanced medication, overcrowded classrooms and curricula that seem to expect way too much from teachers and pupils alike, we have a different solution: medication.

I must admit that before we had the option of home education, we did go the route of medicating the problem. The results were marked and mixed, and not the subject of this post. However, the final result of all of that was to find a different solution. As you know, a large part of the drive behind creating this blog was to document the pathway to that solution, so that I wouldn’t forget it.

First of all, I can say unequivocally that home education is the best possible solution for my little family. It is ideal for our temperaments and thought patterns, as well as (surprisingly) our hectic lifestyles.

But there’s more to education and a lifestyle of learning than simply how you get your basic facts into your head. What with innumerable allergies and intolerances, and a family history of epilepsy, cystic fibrosis, diabetes, cancer and chronic migraines, I’ve always been interested in what we eat and how that affects us. I may have mentioned the wonderful supplements we take, which have done wonders for our health and energy. But even with a completely gluten-free/dairy-free lifestyle, and the world’s best nutritional supplements, we still have ailments. The girls and I all battle with gastric cramps and the attendant pleasures that go with that. We get headaches and blurry vision. Sometimes it’s hard to concentrate, and Papa Bear has the added distraction of being very, very tired all the time.

Furthermore, Goldilocks and I both twitch. In both of us, it started out as chronic, though barely noticeable, blinking. It progressed from there to forehead and cheek twitching and has gained an added dimension: vocal tics. I won’t bore you with the details but, simple put, we make sounds. I’ve been doing it for years so when Goldilocks started I knew what it was. I was disappointed for her as I’d hoped it was a stress-acquired thing in me and in no way genetic, but I could fully understand what she was going through. The sounds she makes resemble throat-clearing, and have become more and more obvious. Eventually one evening Papa Bear lost his temper with her and insisted she stop. Not understanding how she could control it for brief periods, only to be driven to do it even more prominently later, he assumed she was doing it on purpose, albeit subconsciously.

Shocked at his dramatic reaction, I realised it was time to act. I spent most of that night researching “chronic compulsive throat clearing in children“. The results were astounding. I discovered that tics of all sorts, from minor to major motor tics and a wide range of vocal tics which essentially comprise passing air through the nose or mouth in different ways, were all related. These are more prevalent in people with OCD or ADD of even degree. If two or more motor tics and a vocal tic are present, and if these present before 18 years of age, the correct term for the condition, no matter how mild, is Tourettes.

Huh.

I had actually been told this before, but since I didn’t think much of that particular doctor, I’d dismissed it out of hand. Now, however, I was faced with rather more concrete evidence.

Having already booked a doctor’s appointment to investigate my permanent thirst and frequent visits to the bathroom, I decided to bring this issue up there and settle it once and for all. And whaddya know. Tourettes. Both of us. So that was interesting. (The other symptoms appear to be linked to an overdose of coffee rather than anything more sinister, since I am in perfect health in every other way (besides gastric issues) – apparently two to three pots of filter coffee each day is not an acceptable average. Go figure.)

Since then I have been researching the various treatment options for Tourettes. (In short: none). It’s not serious or life threatening. Mild cases don’t even impact your quality of life in any significant way, bar teasing at school – enter Home Education! And of course it has no impact on intellect since the majority of Tourette’s sufferers have above average IQs. Well, I could have told you that :).

I have also been researching ways to perfect the gluten free lifestyle since I do still have a lot of complications with this. For instance, my weight has plateaued and nothing shifts the slightest gram. I have chronically bad skin, which is frustrating given my advanced years. I cramp and bloat and all those other lovely dinner-table topics we don’t like to discuss in huge anonymous fora like these. I stumbled across something called the SCD diet – have you heard of it? Now, that is the topic of a whole post on its own, and this one is already rather long winded, so no more on that here. What fascinated me about it, however, was the link between SCD and autism, with a huge number of parents of autistic children recording amazing results in their children’s health on this diet.

Hmm.

The lady who works for us is a genius and bona fide genetic scientist. She is also dyslexic and mildly OCD, so when she was studying genetics at university, she did a lot of research into the link between OCD, dyslexia, ADD (which her brother has) and genetics. Turns out: there’s a big link. Apparently any damage to chromosome 21 cause these neurological (not psychological) problems. Mild damage causes mild problems (very minor OCD, manageable migraines, etc), while the more damaged the chromosome is, the worse the results, until you get severe autism. This can be caused by birth complications, genetics or vaccines. (I am not a scientist, I’m simply repeating the results of a LOT of reading. Obviously, I may well be wrong here. I’m just saying it’s interesting). But with a family history of ADD, ADHD, OCD, epilepsy, dyslexia, migraines and now Tourettes, it certainly gives one pause for thought. Surely there must be a link?

Even more curious: how can a diet developed specifically for managing digestive issues have such a significant impact on both autism and ADD? I can’t wait to dig deeper and find more because it really is fascinating stuff. I’ll share what I find as I go along (this might be a good time to suspend your membership if this is too dull!).

 

 

Ken Robinson says schools kill creativity

This week is HOLIDAY week for our family, and I doubt I’ll post before the weekend. So I thought I’d share this brilliant video to keep your thoughts churning this week. It really embodies my views on so-called “traditional” schooling.

Tell me what you think.

Bleak days for education across the globe.

There are a lot of reasons for home schooling one’s children. We don’t have just one reason behind our decision, and I’m sure that is true of  most, if not all, home schooling families. Some of our reasons included:

  • Financial considerations. No matter how you look at it, home schooling costs less than traditional schooling, and you have the opportunity to provide a much higher standard of education than many of the local schools offer.
  • Concerns about peer pressure and stress. We were concerned that the challenges facing children from both peers and teachers were both damaging and unnecessary, and certainly not conducive to developing a love of learning in our children.
  • Labeling. With one child classified “ADD” and one child deemed to be physically delayed, I felt the girls were being unfairly marginalised and not developed to their full potential. No one likes to be stigmatised for any reason.
  • Curriculum. I have been getting more and more concerned about what is actually being taught to my children. For one thing, I don’t think the standards in local schools are high enough. For another thing, important facts are being ignored or completely altered. Also, I am a staunch creationist and I intend that my children should know this truth about the universe, too. Staying in a local school would not achieve this. For the girls to be honest about what they believe, they would have failed classes in school. The alternative was to lie. Neither of these is an acceptable outcome to me.

These are just some of the reasons we chose to home school, and I’m sure ever home schooling family can add their own reasons to the list. But this week the news media seems to be on my side, inadvertently adding to the list of good reasons to home school:

For starters, when commenting on the 100% pass rate achieved by the matriculants of the Oprah Winfrey academy for girls, the world-famous talk show host expressed concerns that the standard of education in this country is too low. (Read the article here).

Then there were the widespread reports of first-day chaos around the country. No spaces in schools. Not enough resources: textbooks, stationery, uniforms, chairs, tables. Kids not registered and trying to sneak into schools. Kids who can’t get to school unless they swim across the local river. Seriously. Not enough teachers. How does the school year start without all of these things in place? It’s unfathomable how unprepared the schools are, and scary for the poor children missing out on their right to education. (Read more here).

And then finally, today I read an article about Richard Dawkins celebrating his UK victory over creationists by essentially having the teaching of creation banned in schools. Not exactly, but they lose funding if they teach it. According to Dawkins, evolution is scientific fact while creation is nothing more than myth. Without going into the masses of detailed proof that creation is true, it’s simpler to point out that evolution is nothing more than a theory. Even evolutionists can’t agree on the basics, so what makes it more right than creation? There’s more on this subject at the Answers in Genesis website.

However, the debate between evolution and creation is not the point of this post or this blog. The point is that this kind of action provides a very good motivation for taking the kids out of main stream schools and teaching them myself. Which is what I’d better go and do now, rather than updating my blog any further.

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